Pieces of Her

Good night world and all who inhabit it,

I am gearing up for my weight loss surgery. It will be taking place mid June. Some of you may know that there is a process to this weight loss surgery, the process isn’t bad.  It is interesting .  I have done my first 2 nutrition appointments and met with the surgeon.  Next week I have , nutrition, psychiatrist and endoscopy.  Since I started , I have been trying to make changes so that once I have the surgery its not so bad adjusting.

First up -no bubbles.  Not supposed to have carbonated beverages so I cut out soda.  I was drinking sparkling water to get the bubbles thinking it would help me, but  I had to cut it.  I have been drinking my 64 oz of water each day .

Protein – I am going to start getting some protein shakes since day 2- day 9 after surgery will be all shakes.

Anyways, I have been trying to get moving more and this week I have been really thinking about my Mum. Probably the impending Mother’s Day holiday.

I was driving along this weekend and I started squeezing my butt to the beat .  I can hear my Mum now, her proudly proclaiming how she would do her butt squeezes to the beat of what ever song was on… Maybe if I keep it up, I will have ” Buns of Steel” lol.

I was cooking dinner the other night dancing around the kitchen, and all I could do was think of  Mum.  Dancing around to One Direction, no less.  Ridiculous I know, but have you listened to them? So damn catchy! Current obsession is ” Steal my Girl” and “Perfect” .  I ain’t too proud to admit I am a grown ass woman dancing around to a boy band that’s not NKOTB or Backstreet Boys. ( for the record, saw NKOTBSB in concert at Fenway Park – UNBELIEVABLE Show!)

Its these little things that I feel Mum shines through.    I know I am probably searching for signs and finding them in places, but its comforting to an extent, like there are pieces of her here with us .

Like tonight, I was taking a ride to go see her, her headstone is in.  I needed to see it in person. So I am driving along and ” Beast of Burden”  by the Rolling Stones comes on .   I don’t remember downloading it, could of been the hubs or maybe the kids, but in any case, there it was blaring out.  My mother and I had this running joke – I was forever singing ” I’ll never be your BIG SUBURBAN ….” instead of Beast of Burden.  So there I was crying my eyes out on the way to my mothers grave singing at the top of my lungs

” I’LL NEVER BE YOUR BIG SUBURBAN !!!”

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I know she is always here with me, I just like when she reminds me in funny ways.

 

Back to my weight loss stuff – I am currently down 5 lbs! I am looking forward to the surgery . I know I have the best Guardian Angel on my side 🙂

 

Don’t Stop Believing !!!

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Conumdrum

co*num*druma confusing and difficult problem or question

 

Its no secret that I need to lose weight.  Now more than ever.

I am like the Stay Fucking Puft Marshmallow Man.

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( Actual Likeness)

I am the first to admit, I am by no means a healthy eater and it has been quite some time since I was able to do a proper workout.  I would love nothing more than to get into the gym and lift heavy shit.  I am so hopeful that this new medicine will allow me to resume my life.

Have you ever felt trapped?  Try being trapped in a body you don’t recognize.  I feel like the real me is buried underneath these layers of blubber and she is drowning. Suffocating. She is disentergrating.  It’s like I am stuck in here and my skin is going to burst.

Here is my issue – and by no means am I making excuses or blaming someone else for my situation…. The fact of the matter is very simple.

Up to the past week, I hurt.  My whole body was sore.  It is very difficult to do anything when you are in pain.  So maybe it is an excuse, but it is the reason I have not worked out or done anything remotely resembling exercise.  I don’t eat good either, can’t blame that on anyone either.  Current status is wicked sore left knee. Fuckin arthritis. UGHHH

I have allowed my disease to rule my life.  I am not proud of it, this is a badge I do not want.  But sadly , this has become my reality.  And not for nothing I do not even have a name for this disease.  I have a faceless demon ripping my life from me and I can’t even blame anything for it.  Its frustrating as hell.

  • Whole body pain
  • Fire skin
  • Exhaustion

These are for the most part,  daily occurances.  While I have had some relief from the pain depending on the different medication I have been on , it always comes back.

Tonight I will do my  6th Actemra injection.  All in all, so far, the whole body pain has subsided and  the fire skin has too.  My knees are killing me, but I am pretty sure that is more due to my ridiculous weight gain.

So here I am , wanting to work out, wanting to be a better version of me and here I sit, broken. That is my conumdrum.

When I went to the Sleep Disorder doc, she recommended that I check out the Center for weight Management at the hospital.  I said yes, figured I would get some tips and tricks and maybe, just maybe , be able to jump start my weight loss.

I am stuck in a vicious circle.

Need to lose weight —> In pain and hurts to move so I can’t exercise  —> depressed about it all —> Eat more and move less due to the pain and depression —->  Miserable all the time —> always exhausted —> New medicine ( yay!) —> soreness subsides EVERYWHERE EXCEPT MY KNEE! —-> Finally feeling better —> can’t do shit cause my knee makes it hard to move— Back where I started —> Need to lose weight

So at the appointment I get weighed in of course.  And the number is the highest it has ever been, like disgustingly high.  Didn’t help that I had to do it twice cause the nurse asked me to get on the scale then walked away, like I needed to see those big red numbers twice.  Ugh.

Then as I sit reeling from the metaphorical weight of my physical weight, the nurse lightly says ” I’ll take of 3 pounds for shoes and clothes”.

BIG SHIT,what difference does 3 pounds make?! Is that supposed to comfort me?

Doc comes in and I go over my history while she takes notes and reads my file.  When your doctor says ” oh boy ” multiple times….. kinda sucks.  So she non chalauntly says I am definitely a candidate for surgery, particularly the sleeve version.  Because of my ” complex medical history” and my ,current medications, she did not feel that putting me on the common weight loss pill would be good for me and would cause issues.  She prescribed a hormone shot that I will do every day that should help with cravings.  Of course I need to wait for the insurance to approve it, so , not sure how that will work just yet.

So , here I wait.  I was told the surgical team will call me to start the process and make sure I qualify.  And all my doctors need to approve as well.  1st step is an informational meeting that I need to attend.

I have to be honest, I never imagined that I would be someone considering weight loss surgery.  And I know that my current state is of my own doing , and if I do the surgery , to be successful I need to change a lot. And did I get some help from the meds I was on? I am sure I did, but I can’t blame being morbidly obese on them.

My life is my fault.  And maybe if I didn’t weigh so much , my Meganitis would not be as bad.  Who knows?  All I know is that I need to do something that gives me a fighting chance at feeling better.  Everything is connected.

The absolute worst thing about all of this weight shit is I did it to myself.  Its completely embarrassing being this gross thing that I have become.

Sometimes, I just don’t know who I am .  Like there is a version of myself I see in my head and she sees the outside and can’t get out or be heard.  I know I am a crazy person.

I just want to be happy.  Happy in myself, happy with myself, Happy in this life.  I just have 37 years of failure to contend with. Isn’t it awful that more often than not, we are our own worst enemies?

Cheers to new hopes on the horizon…

 

Just Keep Swimming and Don’t Stop Believing,
Xoxo Meg

 

 

 

 

 

You think you know, but you have no idea…Real World : The Unknown Sick

real world

This week has been particularly awful as far as my Meganitis goes.  This is the most pain I have been since this whole thing began.  On the positive side though – I started the actemra this week after several rejections for this and other medications that might help.  Just in time too – my inflammation is way up, blood work was high.  Down side is that it could take 3 weeks for this to kick in.

So, my life right now is just ugh.  I have been trying to be positive about everything but the struggle is real.  It is very hard to maintain any sort of joy when you are in constant pain.

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To be honest, I started this post last week, its been sitting here brewing, all my thoughts jumbling around my brain.  I want to say so much but its just hard to get out.

So yes, last week was one of the worse on record for me.  In addition to the excruciating pain, my inflammation was “way up ” per my doctor.  I started my new medication, I am doing Actemra shots every week.  I have been rejected for other medications by my insurance company and last week came THE talk with my doctor .  You know the one, the one where the doctor says ” Can I be honest with you?” you say ” yes of course” and he says ” I don’t know what is wrong with you and we are trying everything I know . Nothing is getting better and you are getting worse. If this doesn’t work, we may have talk about if I am the right doctor for you or  a visit to the pain clinic”

To sum up :

  • No Stills disease which he previously said I had
  • Getting worse, not better
  • Inflammation way up
  • Actemra is my hail mary pass – if it doesn’t work not sure where we will go, co pay is $40 for a month supply, pricey , but if that is what it costs to feel good – so be it
  • My “foggy brain” seems to be fixed by switching my Gabapentin to a different med at night ( I guess 1500 mg is a high dose?) That I have definitely noticed a difference.  I was not as forgetful and felt like I had a clearer head.

I capped off the week taking time off from work to rest.  I have to say, doing nothing for days was exactly what I needed to recharge. I did my second Actemra shot last night and returned to work today .

It is so hard not to allow this demon sickness to take over my life.  It has so much become who I am and I fucking hate it.  And as much as I hate it, I don’t know how to change it.  My day to day depends on something I cannot even put a name to. I have no fix , I have no cure, I have no name .  I am a guinea pig after 9 different doctors.  What is the most shocking is that these are the best doctors in the world and they still do not know the cause of this.  Its getting old hearing ” maybe they will name a disease after you …” Like fucking really ?

I have to think about every step I take,  and if the pain is bad enough, I have to think about how I will sit, how I will walk or hobble.

It sucks being in constant pain.  It sucks being constantly exhausted.  It sucks having skin that feels like it is on fire.  It sucks having your armpits swell and hurt.  It sucks when your neck hurts.  It sucks getting random lumpy lumps ( thank God, I have not had in quite some time )  It sucks looking at yourself in the mirror and seeing a completely expanded distorted unrecognizable version of yourself.  It sucks not being able to move and exercise to make yourself the person you knew.

Pain is ugly .

Pain is strong.  Much stronger than I thought.

And I am weak.

I keep trying to find the way.  Any way that I can resume my life and get out of this mud filled funk.  I hate feeling the way I do .  And I know , you are probably saying , suck it up , or change your life then, but if you have ever been in never ending pain, you know it is easier said than done.

Like seriously , when will it end?

Soooo, bringing us to today :

I actually feel more better today than I have felt in a very long time.  I want more than anything to declare my love for this medication , thinking that it is responsible for this feeling, but the pessimist in me tells me to hold off on that parade just yet.

I felt better today and that is a small victory that I will take and hold on to.  I have gotten much better with the acceptance of the little victories instead of getting pissed I am not well.  I can only hope that I will continue to go up from here and not slip back down into this pit from Hell that my life has succumbed to.

I like to think that I am a strong person, but to be honest, I just want to curl in a ball on my bed and wait for this to pass over.  Wishful thinking …. that it will actually pass.   I have definitely become more of a headcase through this, which sucks.  I am looking into therapists to see if that will help me at all.

I don’t feel normal.  Like what do you say when someone says ” How are you ?” do I lie and say ” Great ! Never better !” or do I tell the truth and say ” I’m in a shit ton of pain with no end in sight, how you doin’?”  Then I have to explain everything, which for folks to understand what I have going on, I have to do it.

Maybe I will print out cards to carry around with me….. ” Meganitis , the bad and the ugly, there is no good…”

I think of my mother everyday and I how I want to make her proud.  She dealt with so much medical crap, I don’t know how she did it.  I wish I had one ounce of her strength .  She dealt with so many things medically and she never let it affect her spirit.  Mean while my spirit seems to be sucking me away like the bad spirits in he movie Ghost

 

ghost bad guy

Yea, this is me, lol

Mum didn’t stop believing and I have to believe there will be better days to come.

Until then, I will Just Keep Swimming… cause ….

just keep swimming dory

Don’t Stop Believing and Just Keep Swimming , feels good to say them together .

Good words to live by, guess I need to take my own advice…..

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I Feel Good Today !!!

Holy crap!!! It’s true – I FEEL GOOD!!!!

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I do not know what caused this change but man, is it great.  I am not sore .  I am not in pain.  My skin is not on fire.  My armpits do not hurt.

I don’t know why any of this has happened or how long it will last, but baby, I am rolling with it.

I have been really evaluating my life lately.

Things I know for sure:

  • I have to lose this weight – I talked to Coach Jane and next week I am starting back at the gym.  I have tried all sorts of ways to lose weight and honestly, the thing that worked for me the best was going to the gym and training with a coach.  And Coach Jane is incredible.  She pushes me and that is what I need.  I just gotta push through the pain . Now hopefully my workout clothes still fit.  I am really excited.  But I know that taking this step in the condition I am in is going to challenge me immensely. Hopefully this old broken body is ready for this ride.
  • I need to change my diet.  I have read that the best diet for reducing inflammation is the ” Mediterranean Diet” Basically heavy on the fish and omega 3 oils.  Yeah, I cannot eat fish. I can’t stand the smell of it, I think I have been scarred by too may co-workers microwaving fish …… UGHHHHHH.  But, I need to do something, I think I am going to give Gluten Free a try again , I am still on the fence, but I need to make a change.
  • I need to take care of me.  I need to listen to my body and not overdo it.
  • I am so blessed and lucky.  I have such a great family.  You should be jealous.  I am just so lucky.  I am lucky to have been raised by the most incredible creature to ever walk this earth.  I am lucky because I have a partner in life who has my back.  He is more than my rock. He is my strength.  I am lucky because I am a mother to 3 kids who continually amaze me.  I have good kids.  I am so proud.  I am lucky because I am the oldest of 3 girls and I have sisters that give me such strength when I am down . They have given my nephew and nieces, great men I consider brothers.  I have friends who are more than friends, they are family.  I have aunts and cousins who I actually talk to and see.  They are more than cousins, they are my big bros and big sis.  I am lucky because I have a good job.  I am thankful we have a roof over our head and food in our bellies.

 

Today was a good day . I am hopeful that it continues and I can become a human again.

Gotta see the light through the darkness.  I need to do that more often.  It’s the best way to honor my mom. She dealt with so much, I feel bad bitching about my issues , knowing how much she had to endure.  I miss her so much.  Grief is horrible.

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But ==== I am not going to wallow!!!! Mum would not want that.

Today was a good day and I am rolling ( or swimming ) with it.

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Don’t Hold Me Down

We all have insecurities. We all have doubts about our lives or ourselves at some point . And if you are gonna say you don’t , I am calling bull shit .

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I have to be real here , I’m sick . I have a disease according to my doctor we just don’t know which one . Is it deadly ? I doubt it , I think it would of gotten me by now . Is it common ? Yeah , gonna day nope on that . Do we know what it is ? Another Nope city .  I am very thankful that what I am dealing with isn’t as bad as it could be .  In the grand scheme of things , I am lucky . For the most part , I can still function . It varies from flare to flare , at the moment I can still do mostly everything.

Right now however , I’m in the middle of this big flare . The pain is excruciating.  I’m beyond exhausted . And my fingers hurt , really really bad . I need that to subside .  To say I am hot, is an understatement.  It feels like Hell itself is residing on my skin.  It has gotten as bad as randomly breaking out in sweats through out the days.  For example, its 60 degrees out and I am sitting with the Air conditioner on full blast.

What I am finding more and more as this progresses , is that I am having a more difficult time doing things.  Or things I normally look forward to, bring me severe anxiety.  Things require more planning and even with more planning, I still not be able to what I intend to.

I NEED TO FEEL BETTER!!!!

I keep telling myself I need to work through the pain I am in.  I am the one holding myself down, albeit unintentionally.  Which royally sucks.  Like, what do you do when you are literally causing yourself pain.  Its awful.

So, what do I do ? Here’s the plan:

My doctor is working on getting me approved for a different medication.  Hopefully this will be a key starting the car that is driving myself back to normalcy.

Its time for my appointment with the ENT to get a sleep study done.  Pretty sure I will be told I have sleep apnea, which losing weight ill help. But we will see what she says tomorrow.

I am doing my best to be positive like my mom.  Yesterday she was gone 2 months, it still seems like she just left us.  I still don’t know how to be.  When does it get better?  I know the answer, but I just wish that wasn’t it.

I am hopeful things will get better.

I can’t let me get…me.

Before I sign off, I just need to send my heartfelt love to the victims of all the recent tragedies that are befalling this world.   We witnessed the largest mass shooting in American history this week.  When will senseless violence end?

In the words of the great Bill S. Preston Esq. and Ted ” Theodore ” Logan :

BILL AND TED

I think if we all were more EXCELLENT to each other, we would find this world a much better place.

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Ice Cream Without Borders

I think Depeche Mode sang it best :

“People are people
So why should it be
You and I should get along so awfully

So we’re different colors
And we’re different creeds
And different people have different needs
It’s obvious you hate me
Though I’ve done nothing wrong
I’ve never even met you so what could I have done

I can’t understand
What makes a man
Hate another man
Help me understand”

Right now , in America, we are coming apart at the seams.  I don’t usually  get PC, but I just want to point this out – you , me, Bob down the street, the cashier at the store, every professional athlete, every politician, every man, woman , and child no matter what parts you were born with and choose to recognize –

UNDER OUR SKIN – WE ARE ALL EXACTLY THE SAME

Crazy = right? But seriously  think about it.  We all have organs, blood, veins, bones.  We are all the same, just wrapped in different packages.

If ice cream came in a box instead of a bowl or a cone- would you still eat it?

Damn right you would – who is gonna say no to ice cream? Its the same concept – same on the inside – different way of packaging it.  Ice Cream comes with nuts or without, chocolate or vanilla, sugar free or smooth and creamy. So many different varieties – it is awesome!!!  It is literally the beauty of ice cream.  What is your favorite flavor?  Mine is black raspberry or reverse chip ( chocolate ice cream with white chocolate chips, it is soo hard to find, if you do find it – do not deny yourself!!!)

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I think we should look at the world as our ice cream social .  All these different varieties .  And you know what ? If you don’t like one flavor, try a different one , change your add ins or your topping.  Throw some whip cream on that shit and hope for a big enough spoon.

If we as a people could stop being so focused on what we hate about everyone and start focusing on what we love about people , just imagine how great things could be for everyone.

So , instead of looking at each other how we usually do – lets start envisioning which flavor we are instead.  If anything – its gonna put a smile on your face!

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The Bittersweet Dance

I have been working on this one for over a week, forgive me for the past tenses.


 

 

After my mother passed away, my sisters and I decided to enroll all our girls in dance class.  The same dance studio that my mother went to , the same dance studio that we went to.  For years on Wednesday afternoons, we would make the half hour drive to Amesbury for our tap, ballet and jazz lessons. As I sat there waiting during my daughters class, so many memories flooded back. It didn’t  help that literally amongst the picture collages on the wall were some pictures of my mom.  Looking at her pictures, she was so full of life!  She was so happy. She loved dancing, she loved dancing school, she loved the family that owned the studio.  Its funny, so many people at her services commented on what a great dancer she was and how much she loved to dance, but honestly, I can’t remember when she was well enough in recent years to actually dance.  I bet it had been 10 years or more.

It was so bittersweet,  heartbreaking actually.

It seems like this week everything has been crappy.  I am still dealing with armpit issue.  They hurt so darn bad. Still.  I went to the doctors on Monday. More blood work.  If my levels were high, then Pet scan would be ordered.  My levels are elevated by not high enough I guess.  My doctor is also trying to get me on a different medication that may help me better.

In the meantime, I am still in pain and I am still sore.

I am struggling with my disease, that’s what the doctor is calling it.  Though the whole thing isn’t fully named, I am really having  a hard time.  I don’t know even how to explain it.  Just being is difficult.  It is hard getting out of bed, getting dressed, all my daily activities.  I have faith that I  will get an answer eventually  and that I will have a regimen that works for me. In the meantime though, Things suck.

I want to feel better, more than anything.  I am terrified that I am cursed with my moms poor health and that I am doomed to follow her path. And I know, I know, situations are entirely different , and yes, I am most likely being dramatic, but  I don’t want that. I don’t want to deal with this crap the rest of my life. I want to live the best life possible.  I just don’t know how to do this.

I am wrestling with my emotions and reality.  What am I supposed to be or do ?

I need to lose this weight. I need to be better and I need to move. But I can’t while I feel this awful on a regular basis . I need just need to have faith that answers and treatment plan will come soon .  Its hard .

My mother always saw the light through the dark.  The positive through the negative.  The love above loss.   I wish so much I could be like that , and I swear I am trying .  I just at a loss on how to execute it.

Hopefully one day I will rise above and be able to live this life the best way I can .

Until then, I will just keep swimming.

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Armpits and Magoo

The latest in a series of unfortunate events regarding Meganitis is an ongoing severe armpit pain.  Yes, I said it , armpit pain.  Truth be told my armpits always hurt. Weird, I know.  But its just another thing I have gotten used to in my daily life.  However , this week, the armpit pain has been freaking awful.  Throbbing pain in my armpits, yup, this is what my life has come to.

So, normally, I would call my Mom and she would say something to make me feel better regarding my armpit issue. Usually something wacky and insane to make me laugh whether or not she realized she was being wacky and insane.

Thanks to Facebook’s “on this day” feature , a wonderful memory came back.  Maybe some of you are familiar with the cinematic genius that is Mr. Magoo’s Christmas Carol.  This film was a staple in our house growing up and my mother, my sisters and I would happily sing along.  Honestly, we reference this movie all the time.  Countless hours of laughs through my lifetime thanks to his movie.

So today , when I was feeling particularly low and upset about my illness, this memory popped up on Facebook.

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Of course I burst into tears.  But this is just another way Mum was fucking amazing ,  I mean she was just nothing short of incredible.  And I am so thankful that this beautful creature is my mom.

I hope you all are lucky enough to have someone in your life like my mother.  Someone who found the laughs in everything, someone to be goofy with , someone to love you unconditionally no matter what bad decisions you make.

I don’t know when if ever my heart will heal.  I kinda think It won’t.

Going to keep moving on and keep swimming.

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You May Say I’m a dreamer

But I’m not the only one …. 

Momma was too . 


My mother was probably the biggest dreamer I know . Always having hope that her dreams would come true . I’d like to think that all her dreams came true , but I’m sure they didn’t . I mean if her dream was to be the bestest momma ever and the bestest nana ever and just the greatest human to ever live – then mission accomplished! 

Sunday we started the process of going through Mums things . Gut wrenching doesn’t even describe it . It was fucking awful . It would of been no matter if it was a month since she has been gone or 10 years . I hated it . 

As long as I can remember my mother was always dreaming of a better way , dreaming of her own business so she could contribute. She did the usual , you know the home party route , Princess House , Party Lites , she did Avon . In fact , it was when my mother was canvassing the neighborhood selling Avon that friendships were forged with our neighbors . Now , 34 years later , we are still friends . That’s magic . 

My mother had a cross stitch business for a large part of my life as her health would allow . She would sew these amazing samplers and then she would stain them to look antique. I would go with her to craft fairs . She was so talented , it blows my mind . She had done an after school program that I helped her with . She made cross stitch kits for these kids . They all loved it . Honestly I had forgotten about it until I was looking for a cross stitch kit for my daughter and I to do together . I , myself haven’t done it for probably 20-25 years, but I want to give it a whirl . And my daughter wants too a lot . So the search continues for a kit . 

Amongst my mothers things were a plethora of crafting items . From frames to jewelry making tools and beads to jewelry she wanted to sell , and as I think of it , it makes me so sad . She had all these ideas , probably thousands of ideas and she never really got to see them through .  

It just breaks my heart that her body would  not allow her to fulfill her dreams . I hope she didn’t look at it that way , but I can’t help but think of it like that . 

All of this has me really thinking about my dreams and what I want out of my life . What am I passionate about ? What do I want to do in my life ? I mean I got very lucky with 3 healthy kids , but what do I want ? For me ? To fulfill me ? I think as parents we get so caught up in our kids that we forget about ourselves and what made us who we are to begin with . 

So , for me , I want to get back into writing . I have story ideas that I need to bring to life.


I love writing . I always have and it’s something I have been going over and over . In another moment when Mum sent me a sign , I was watching the Simpson’s last night ( yes , I watch the Simpson’s , don’t be hatin’) and it was the episode where Moe becomes a writer and gets to go to Word Loaf . Check it out below : 

Moe N Lisa Simpsons
I looked at it as it’s an episode about writing . And I have been searching to find myself and how I honor my mother . So , I took it as a sign . 

I think the way to honor her the best is to just be me and not stop dreaming . 

And now that I’ve got some star power up there , maybe some of these dreams will come true . 

Don’t stop dreaming 

Don’t stop Believing 

Don’t stop Swimming 

Signs on a Saturday

Hi everyone. How’s the weekend treating you ?  I had a very busy Saturday . Which I am already paying for . My body is screaming today . And I slept pretty darn awful . But let’s focus on the positives of yesterday . 

I made what is becoming my weekly pilgrimage to see Mum . This week my daughter picked out a red heart balloon that says ” I Love You” and we picked out a bouquet of various colored roses .  It’s hard for me to go to the cemetery. I guess it’s the part where I leave her there . All alone . I feel like putting in a couch there for us to go sit and talk to her , lol. I think though I want to get her some of those solar lights so it’s not so dark for her . 

I’m trying to deal with my mothers death in a healthy way , but really , how fucked up is that ? A healthy way ? What does that even mean ? How is any of this healthy or right ? Healthy should of been what she was . And right is definitely , what this is not . 

I also trying to get my emotions under control because the more upset I am, the more prone to flares I am.  I seem to be in a flare state since my mother died and I am in a lot of pain , physically and emotionally. I am hopeful my recent change in meds will help with this, but so far no . 

So ,back to my day . We go see Mum , then head for a quick visit with my dad . Then we head to get our hair done . My desperate need for cut and color and my daughters back to school cut . We get there early so we  walk around hunting Pokémon . Lots of walking around . We get our hair done , head to pick up my oldest from work and head home . The hubs and I went out for the night to celebrate our 18 year anniversary. 

We get home late and I am so exhausted. I’m trying to get to sleep when my daughter comes in upset about Nana. She is crying and inconsolable.  She’s clutching her bunny Pinky which her and Nana made together at Build a Bear . Seeing her like this just breaks me . I’m trying to comfort her and myself at the same time . So I tell her about the Signs . Signs that Nana will show her that she is there and with her . I tell her a story about how a cardinal came in the yard the other night while I was talking with my dad . How I know it was Nana . I tell her how even though she can’t hear her say “Hi Maddie , I am here ” she will let her know that she is there with her . I give her a blanket of my mothers for her to sleep with and I head to her room to tuck her in . When I get to her room she holds up 2 Beanie Babies . 

Wouldn’t you know ? ONE WAS A CARDINAL ! I burst into tears again . I told her that Nana was letting you know she was here already! I don’t know who it comforted more , me or her . 

Even in death, Mum is still looking out for us and giving us what we need . Absolutely incredible. 

One of my most favorite movies is The Crow. We even named our dog , Draven , when I was a teenager after the main character, Eric Draven. Mum loved that dog .  This is one of my favorite quotes from that film :

” If the people we love are stolen from us, the way to have them live on is to never stop loving them. Buildings burn, people die, but real love is forever.”


Real love . Real love extends beyond a significant other . Real love extends beyond our children , our parents . Real love is love we have for those in our life we would do anything for . Regardless of blood . 

Signs are real . Weather or not it originates in your head , if it comforts you , it’s real . For now it’s what I will believe in .