Don’t Hold Me Down

We all have insecurities. We all have doubts about our lives or ourselves at some point . And if you are gonna say you don’t , I am calling bull shit .

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I have to be real here , I’m sick . I have a disease according to my doctor we just don’t know which one . Is it deadly ? I doubt it , I think it would of gotten me by now . Is it common ? Yeah , gonna day nope on that . Do we know what it is ? Another Nope city .  I am very thankful that what I am dealing with isn’t as bad as it could be .  In the grand scheme of things , I am lucky . For the most part , I can still function . It varies from flare to flare , at the moment I can still do mostly everything.

Right now however , I’m in the middle of this big flare . The pain is excruciating.  I’m beyond exhausted . And my fingers hurt , really really bad . I need that to subside .  To say I am hot, is an understatement.  It feels like Hell itself is residing on my skin.  It has gotten as bad as randomly breaking out in sweats through out the days.  For example, its 60 degrees out and I am sitting with the Air conditioner on full blast.

What I am finding more and more as this progresses , is that I am having a more difficult time doing things.  Or things I normally look forward to, bring me severe anxiety.  Things require more planning and even with more planning, I still not be able to what I intend to.

I NEED TO FEEL BETTER!!!!

I keep telling myself I need to work through the pain I am in.  I am the one holding myself down, albeit unintentionally.  Which royally sucks.  Like, what do you do when you are literally causing yourself pain.  Its awful.

So, what do I do ? Here’s the plan:

My doctor is working on getting me approved for a different medication.  Hopefully this will be a key starting the car that is driving myself back to normalcy.

Its time for my appointment with the ENT to get a sleep study done.  Pretty sure I will be told I have sleep apnea, which losing weight ill help. But we will see what she says tomorrow.

I am doing my best to be positive like my mom.  Yesterday she was gone 2 months, it still seems like she just left us.  I still don’t know how to be.  When does it get better?  I know the answer, but I just wish that wasn’t it.

I am hopeful things will get better.

I can’t let me get…me.

Before I sign off, I just need to send my heartfelt love to the victims of all the recent tragedies that are befalling this world.   We witnessed the largest mass shooting in American history this week.  When will senseless violence end?

In the words of the great Bill S. Preston Esq. and Ted ” Theodore ” Logan :

BILL AND TED

I think if we all were more EXCELLENT to each other, we would find this world a much better place.

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Faking It on a Wednesday

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I feel like Kurt is a good way to express myself. I am a huge Nirvana fan .

I feel like every day I am faking it.

Faking that I feel good.

Faking that I can handle this.

Faking that I am not brokenhearted.

I am trying to suck it up and deal with my daily pains.  I have moments where all i want to do is go to bed. I have moments where I feel fine. I have moments where I want to remove my legs and hang them on the wall. There is nothing I can do. Changing meds hasn’t helped . There is no cure for the fibro and if it is RA ( or a variant of it ) , there is no cure for that either.  Its just one of those things that people deal with I guess.

To be in pain on the outside hurts and sometimes it feels better. But to be hurting on the inside is a whole other ball game. I would take 1000 times the pain on the outside to alleviate this pain in my heart.

I have hurt before, for years I have been in a depression I guess in the clinical sense of the word. I Could not see the light. I feel like the light right now is hiding behind the shadows.  I know this is not how my mother would want me to feel .  I know she would say something crazy or something comforting or both. She had that way about her.

The reality is I miss my mother something fierce.  I miss hearing her voice , I miss her hugs, I miss just knowing she is here.  My mom was my person. My person I call when I am happy, when I am sad, when I have good news, when I have bad news , Mum was my person who could talk me off the ledge and make me feel better.

So, each year for the past 4-5 years I have been taking my son to the comicon in Rhode Island. Today they announced that Cary Elwes would be attending.  My most favorite movie of all time is The Princess Bride.  So, of course, who do I call to fangirl too?  I can hear her going ” oh how cool is that ?!” Not that my dad didn’t have pretty much the same reaction, but its not the same.

I am trying to figure out my way in this world and how to best honor my mother. I’m at a loss.

I need to get myself together, and get back on track. Just trying to figure myself out.

Gotta keep swimming

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Baby Steps

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Good Evening Everyone !

It is with extreme happiness that I can tell you I finally did it = got my tookus back to the gym!

I got my new medication after my rhumetologist  stepped in  .  It arrived on Friday  and I started the injections that night.

I am still nauseaous, but it is not as much as it was before. I am hopeful that after a few weeks, it will decrease significantly .  The best part is that my doctor okay me getting back to the gym as long as I ” listen to my body “. So, I contacted my coach Jane at       Crossroads Strength and Conditioning to see if it would be okay if I came back with my issues.   And she said of course! Definitly knew that I was going to basically do everything modified but I had to get moving.  ANYTHING is better than nothing, right?!

So, started new meds.

Ready to go back to the gym.

And oh yeah, decided to jump on the Gluten Free train.  Let me explain : I had read multiple articles regarding Gluten and inflammation , so I figure, what the heck, I’ll give it a shot. So far I am on day 3.  Honestly, this is 2 days better than I thought I was going to do.  I’m not sure how long that I can keep it going, but if it helps, I am going to give it a whirl.

I got back into the gym and the warm up itself was already killing me , lol.  Onto the workout : here is my severly modified version .  No laughing out loud, 🙂

4 rounds

30 wall throws ( like the baby sister of the wall ball ) just tossed the ball at the wall

20 Step ups on the little box

10 DB snatches!!!! 15l bs —–> I LOVE SNATCHES! AND I COULD DO THESE NOT MODIFIED!!!

5 Push ups – these I did standing up leaning into the bar on the rack.  Truth be told, I totally could feel this in my arms and chest way more than any pushups I had done before.

I completed all 4 rounds – total victory ! And under 20 minutes!

This was complete baby steps.  And this will be for quite some time, I am sure.  This time around , I need to do the baby steps.  I used to get really frustrated when I thought of how far I had come or how much I could lift or do, but this time, I can’t be like that .  It’s wasted energy.  I am just going to roll with it and see how it goes.

Its been a productive week so far.  Hoping to get back in the gym tomorrow. Starting slow with 2 times a week.

Gotta Keep Swimming !!!!

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Leaving her behind

This past week has had some major achievements for me.

First, there was the running on Saturday – able to run 3 times without stopping each time – fucking HUGE for me!

Then, last night – again, able to run 2 times with out stopping – double HUGE

I was also chosen as Athlete of the Week at my gym .  TRIPLE HUGE!

Just to be nominated is such an honor, lol”  But seriously , besides my family – this is one of my most proudest achievements.  It really floored me to be chosen and what really shocked me, was all the great things people were saying about me.   Me.  Crazy, goofy, loud mouthed, fat assed, Me.  I am completely not used to any of that.  I was almost like ” Where’s Ashton Kutcher? Am I being punked? ”

In the past, I have not generally known for being a positive person, let alone inspiring. I used to be called Morbid Megan. And to see that people see me in a positive light,  I am at a loss.  I am thrilled that I have been told that I am inspiring people to better themselves. I feel good and I know I am laying the foundation to be around for my kids for along time.

I am having a hard time seeing myself in a positive light.  But I am growing, evolving, and this is a journey.  It is not just about the weight loss, the pounds, the inches – it is about ME.  Who I am now and who I will be. We all have our shit to deal with – but even with us being knee deep in the shit – I still feel better than I can ever remember.  That is huge!

I am leaving Morbid Megan behind.  She has done me no good.

This is about making changes, and this my friends – is a freaking big one.  And it is long overdue.  Time to embrace the positive.  Time to embrace the new MEG!

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